Sanfilippo Children's Research Foundation (SCRF)

“Strides for Sophie” is proudly run in support of the Sanfilippo Children's Research Foundation. The foundation is a registered charity that funds medical research to find a cure for Sanfilippo and its related neuro-genetic disorders. It was founded by Randall and Elizabeth Linton in support of their daughter Elisa, and in just over ten years they have raised over $3 million for research. Fifteen research projects have been initiated worldwide but many more need to be funded as we are in a race against time with this disease.

The Hospital for Sick Children (SickKids)

The Hospital for Sick Children (SickKids) is recognized as one of the world’s foremost paediatric health-care institutions and is Canada’s leading centre dedicated to advancing children’s health through the integration of patient care, research and education. Sophie’s medical care is directed here by Dr. Julian Raiman, a clinical metabolic specialist based in Toronto.

Centennial Infant & Child Centre

Children with special needs benefit from the routines and skills taught in a preschool program. Centennial's Preschool Program is an integrated program that emphasizes individual programming in an enriched, structured and nurturing atmosphere. Children with special needs and those who are typically developing come together in an educational setting and benefit from the opportunity to learn from one another, and Sophie is looking forward to beginning a daily program here starting September 2010.

Holland Bloorview Kids Rehabilitation Hospital

Holland Bloorview Kids Rehabilitation Hospital (formerly Bloorview Kids Rehab) is Canada’s largest children’s rehabilitation hospital. Holland-Bloorview provides specialized programs and clinical care for children and youth with rehabilitation and complex care needs to enable them to participate in life to the fullest. Sophie is followed at the hospital by Dr. Bigger, and is looking forward to attending weekly music programs there this Fall.

Canadian MPS Society

The Canadian Society for Mucopolysaccharide & Related Diseases Inc. is an organization committed to supporting families affected with MPS and related diseases, educating medical professionals and the general public about MPS and related diseases, and raising funds for research. Friends who are interested in learning more about the MPS family of diseases and Sophie’s condition can become members for a nominal annual fee.

Welcome to Holland

“I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this...”






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