WELCOME TO STRIDES FOR SOPHIE

WELCOME TO STRIDES FOR SOPHIE

Sanfilippo Syndrome is a devastating genetic condition that ravages healthy, normal children. Its cruel trajectory leads to physical incapacity, dementia, and ultimately a premature loss of life in the early to mid-teens.

Sophie and her friends- including Elisa, Jonah and many others- are bringing communities together to fund research that will bring change.  We are hopeful for current research that is pursuing breakthroughs for a treatment or cure. We are close to change, but need your help to fund the scientists that are giving hope to children worldwide that are from suffering this condition.

Global TV

Here is a more recent video of Soph. You can see a glimpse of her spirit and how little events with her are small blessings.

 

 

 



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